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Research for Her Wins National Award in Human Research Protection

BJ Rimel, MDDecember 19, 2013

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Diane Park, Clinical Research Coordinator for the Women’s Cancer Program, helps a Run for Her participant enroll in the Research for Her registry at the 9th annual Run for Her in Pan Pacific Park.

Recently, the Health Improvement Institute recognized Cedars-Sinai—and the Research for Her initiative—with the Award of Excellence in Human Research Protection for Best Practice for developing an online consent process. This is a great honor for all those involved with the Research for Her national cancer research registry, which is administered by the Cedars-Sinai’s Women’s Cancer Program at the Samuel Oschin Comprehensive Cancer Institute.

What makes the Research for Her registry new and different?

  • Online consent is done via the computer instead of on paper and allows women the convenience of participating without having to fill out paper forms and return them by mail.
  • Online consent is the same thing as paper consent and is designed to ensure the protection of women who participate in research.

I wanted to share this achievement with you—the Run for Her® community—because your partnership brought it to fruition. With your support, the novel Research for Her registry launched in March 2013 and has enrolled over 260 women in just nine months. This is an incredible accomplishment!

Through Research for Her:

  • Eight women who did not previously know they were eligible for a screening study for ovarian cancer chose to enroll in the registry.
  • Seven women who had been tested for a BRCA mutation chose to enroll in a study of environmental and genetic factors associated with hereditary breast and ovarian cancer syndrome.
  • One woman chose to join a biobank study that takes tissue left over from surgical procedures and makes it available for women’s cancer research.

These numbers may seem small, but we are making a difference. Every new enrollee is a step toward finding a cure for women’s cancers through science.

Thank you again for your part in our progress and in this great honor.

–BJ Rimel, MD
Faculty Physician, Associate Director for Gynecologic Oncology Clinical Trials

Dr. Rimel is a gynecologic oncologist and faculty physician with the Cedars-Sinai Women’s Cancer Program at the Samuel Oschin Comprehensive Cancer Institute. She is the principle investigator for the Program‘s clinical trials.

Research for Her is a completely web-based registry for women interested in participating in cancer research. Learn more or enroll at cedars-sinai.edu/researchforher.

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